but haven't you made the decision already? allowing medicine to keep her alive IS the decision. they wouldn't have had to abort for this child to have died... that would've been done to lessen the pain both physical and psychological of all parties... The decision HAS to be made for them, just like many of us have or will face the decision of pulling the plug on our parents/significant others, and just like someone will have to decide for us. It isn't fair to cast judgement on those who've made what is probably the hardest decision of their lives and then defer your own answer.
In this case, yes I agree. Had she not had those operations after she was born, she would not have lived. But it's still not that clear cut. We are capable of saving her life and keeping her alive. Some would say that her existence isn't worth it, some would say it is... what would she say? Do we know? What is "worth it" for me and you, isn't the same for someone else.
It still also doesn't answer the other question... say a kid is going to be born with a defect that is correctable via medical technology and without it they'll die, but with it they'll live a normal life... are they worth it?
What if they'll live an "almost" normal life? Are they worth it? Tough questions with no good answers imo.
I also think that there is a very distinct difference between a child that has yet to live a life and an adult that you may have to decide to "pull the plug" on.
That adult has A ) had a chance to live and B ) more than likely now, had a chance to choose if they want to be saved or not.