Sad to hear.
Most ALS victims only suffer physically from the disease.
My favorite uncle, Tim, was one of the few that the disease stole his mind.. The last year if his life he was mentaly
an 8 year old, although he remembered being a much smarter man. He was often angry as you could imagine.
Such a terrible disease.
I miss my uncle Tim.
Prayers to Shaw and hus family.
I miss my uncle Harlan too. We lost him 3 years ago. Coolest guy Ive ever known. Went to see Marshall Tucker Band and the Doobies here in Charlotte with him while we still could. Was a huge Giants/Cuse fan and had developed an affinity for Cam as we had just drafted him.
Still can't talk about that without crying.
My organization (I work for a huge corporation) is sending around these emails with videos of our C level execs dumping ice on their heads and laughing.
Yes, its funny and let's jam up our entire email server with these videos, but myself and a few people have already emailed back asking if we plan on doing some sort of donation or matching donation for employees. Have not yet received anything back.
That was one of the hardest things I have ever had to deal with and go through. Seeing someone you love go from a normal person and watch the process of their body deteriorating day by day is absolutely terrible. Everything was fine inside, he knew what was going on, but eventually had no movement from the head down. He was using a type to speak app on his Ipad. eventually, he was bed ridden until his last days where we were all around him as he left us. I can't imagine how frustrating and angering it must be to lose control of every part of your body and know exactly what's happening on the inside.
Words can't explain how happy I am to see that $13 million has been raised as of the other day.
But, next time you see someone doing the challenge, please ask them to donate as well. Its all fun and games, but those of us affected know how important research and funding for finding a cure to this terrible thing is, and we really are getting closer.
See below- just released on August 6th, this is what your donations are supporting!!
Progress against ALS Harvard researchers identify a promising treatment Studies begun by Harvard Stem Cell Institute (HSCI) scientists eight years ago have led to a report published today that may be amount to a major step in developing treatments for amyotrophic lateral sclerosis(ALS), also known as Lou Gehrig’s disease.
The study, published today in Science Translational Medicine, suggests that compounds already in clinical trials for other purposes may be promising candidate therapeutics for ALS. The Harvard authors found that genetically intervening in the pathway that these drugs act on increased survival time of an ALS animal model by 5 to10 percent. While that is a long way from curing the universally fatal neurodegenerative disease, “any ALS patient would be excited about this extended life span,” said Eggan, who pioneered the disease-in-a-dish concept.